ICBO_2018_65: An ontology-driven data capture and catalogue framework for the development of research and clinical databases in Sickle Cell Disease

We designed an ontology-based Research Electronic Data Capture (REDCap) database of integrated medical and environmental information for Sickle Cell Disease patients. This database integrates data elements in patient clinical records or case report forms (CRFs) across multiple sites and contributes to the unification and standardization of clinical data collection instruments for SCD patient and enhances clinical decision making process and patient care.