ICBO_2018_65: An ontology-driven data capture and catalogue framework for the development of research and clinical databases in Sickle Cell Disease

TitleICBO_2018_65: An ontology-driven data capture and catalogue framework for the development of research and clinical databases in Sickle Cell Disease
Publication TypeConference Paper
Year of Publication2018
AuthorsMnika, K, Group, SCell Disea, Vasilevsky, N, Wonkam, A, Mulder, N
Conference NameInternational Conference on Biomedical Ontology (ICBO 2018)
Date Published08/06/2018
PublisherInternational Conference on Biological Ontology
KeywordsOntology, REDCap, Sickle Cell Disease
Abstract

We designed an ontology-based Research Electronic Data Capture (REDCap) database of integrated medical and environmental information for Sickle Cell Disease patients. This database integrates data elements in patient clinical records or case report forms (CRFs) across multiple sites and contributes to the unification and standardization of clinical data collection instruments for SCD patient and enhances clinical decision making process and patient care.

URLhttp://icbo2018.cgrb.oregonstate.edu/