ICBO_2018_59: Coordinated Evolution of Ontologies of Informed Consent

TitleICBO_2018_59: Coordinated Evolution of Ontologies of Informed Consent
Publication TypeConference Paper
Year of Publication2018
AuthorsJ. Otte, N, Stansbury, C, Vajda, J, Manion, F, Umberfield, E, He, Y, Harris, M, Obeid, J, Brochhausen, M, Duncan, W, Tao, C
Conference NameInternational Conference on Biomedical Ontology (ICBO 2018)
Date Published08/06/2018
PublisherInternational Conference on Biological Ontology
Keywordsinformed consent, informed consent life cycle, ontology collaboration, reference ontology

Our project brings together a number of OBO Foundry ontologies related to the representation of informed consent, and expands and enriches them, so that they may provide a representation of informed consent across the informed consent (IC) life cycle. The IC lifecycle involves not only documentation of the consent when originally obtained, but actions that require clear communication of permissions from the initial acquisition of data and specimens through handoffs to, for example, secondary researchers, allowing them access to data or biospecimens referenced in the terms of the original consent. This poster details the progress we have made in representing the domain of consent, as well as the future applications that such work can make possible.