@conference {ICBO_2018_64, title = {ICBO_2018_64: Development and implementation of the Sickle Cell Disease Ontology}, booktitle = {International Conference on Biomedical Ontology (ICBO 2018)}, series = {Proceedings of the International Conference on Biological Ontology (2018)}, year = {2018}, month = {08/06/2018}, publisher = {International Conference on Biological Ontology}, organization = {International Conference on Biological Ontology}, abstract = {Sickle Cell Disease Ontology (SCDO), is a standardized and human and machine-readable resource that represents terminology about Sickle Cell Disease (SCD), for use by researchers, patients and clinicians. This is a collaborative effort to unambiguously describe all SCD concepts and unifying up-to-date knowledge in sickle cell disease.}, keywords = {Hemoglobinopathy, Ontology, Sickle Cell Disease, Translational research}, url = {http://icbo2018.cgrb.oregonstate.edu/}, author = {Gaston Mazandu and Sickle Cell Disease Ontology Working Group and Nicole Vasilevsky and Ambroise Wonkam and Nicola Mulder} } @conference {ICBO_2018_65, title = {ICBO_2018_65: An ontology-driven data capture and catalogue framework for the development of research and clinical databases in Sickle Cell Disease}, booktitle = {International Conference on Biomedical Ontology (ICBO 2018)}, series = {Proceedings of the International Conference on Biological Ontology (2018)}, year = {2018}, month = {08/06/2018}, publisher = {International Conference on Biological Ontology}, organization = {International Conference on Biological Ontology}, abstract = {We designed an ontology-based Research Electronic Data Capture (REDCap) database of integrated medical and environmental information for Sickle Cell Disease patients. This database integrates data elements in patient clinical records or case report forms (CRFs) across multiple sites and contributes to the unification and standardization of clinical data collection instruments for SCD patient and enhances clinical decision making process and patient care.}, keywords = {Ontology, REDCap, Sickle Cell Disease}, url = {http://icbo2018.cgrb.oregonstate.edu/}, author = {Khuthala Mnika and Sickle Cell Disease Ontology Working Group and Nicole Vasilevsky and Ambroise Wonkam and Nicola Mulder} }